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Days 1 & 2

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He made it through days 1 and 2 fairly easily.  Matt got home last night after an 11 hour day filled with an EKG, echo, blood tests, pre-meds and lots of chemo.  He felt okay with the minor exception of NOT BEING ABLE TO SEE! His vision went blurry about half way through the day and never cleared back up.  They thought it was possibly due to the steroids, which he received intravenously as opposed to the normal oral dose.  However, he woke up this morning and no change.  Luckily, his dad was down here and was able to drive him to his appointments so I could do drop off and pick up for the kids. 



He went back this morning for day 2 hoping to get this vision issue resolved, as well as another long day of chemo.  After his 5 hour infusion, they sent him over to the eye care center at U of C.  They were able to rule out the cause being the steroid and attributed his blurry vision to his new chemo, Daratumamab.  Apparently he has fluid on the lens of his eyes, causing the blurry vision.  Structurally his eyes are in great shape, which was good news.  The eye doctor was able to find one other person who reported the same issue on Dara and reported that it resolved itself in two days.  He did get a prescription for glasses, so tonight we spent the evening searching for eye glass stores that make their lenses in 24 hours.  It would easy if he didn't have an astigmatism in one eye.  So for now, we made plans to get Matt to and from work tomorrow until we can solve the vision problem and he can drive again.  We are hoping it's just temporary and not reoccurring with every treatment.  In the meantime, he got to enjoy "watching" me put together the 4 puzzles Ellery left laying all over our living room floor before bed, claiming he couldn't identify the pictures to put it together. :)

We can't thank you enough for all the love and support these past two days, and so many who been there since the original Day 1, four and a half years ago.

All our love,
Matt & Mandy

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